Whatever tears I managed to hold back the past couple days came out today...and I am very tired, but think writing will help, so I will try...
Yesterday was another VERY busy day at work. I had the same patients, but the doctors kept adding more and more medications to my already busy patients. I TRIED to put things into perspective by thinking that as much as it "sucked" for me to have to give all these meds, at least they weren't going into me and I didn't have to be "messed with" every time. Also, I "signed up" for this...my patients did not. That did help for a little while. One of my patients started losing her hair in chunks from her chemo treatments the week before. While the mom didn't cry in my presence, I could see the sadness in her eyes, and feel it in the room. I managed to fight back my own tears (because, if the mom can, then I should be able to, right?!), but it made for a rough time, knowing this is only the beginning of the very difficult times ahead of them.
While at work, I found out that my "A-team" girl was going to be life-flighted in. That made me SO sad because as much as I love her and her family, I was REALLY loving being able to "love them" from a few states away. I also know how difficult the family separation is, and this family has had to do A LOT of that. I also heard that
this girl who game so close to death in July was once again very sick...
After a LONG day at work, I decided to go ahead and attend a party. It was at the head transplant surgeon's house and I had gone the past three years. I was hungry and it was free food (and drinks), so why NOT go?! I "freshened up" and went by myself (my two potential "dates" both cancelled on me, but my original plan was to go alone, so that was okay). I talked to LOTS of different people and it was a really fun time! I am a pretty social person, but it is hard to know who you will find to talk to at those kinds of things. I was glad to quickly find a group to sit with for dinner and then "mingled" for a while. I was one of the last people to leave which is pretty funny considering most people wouldn't consider me a "party person". It was after 1:00 by the time I got settled in at home and decided sleep was more important than journaling (good thing too because I'm not sure how I would have handled today on any less sleep, and I didn't get up until about 9:30!)
I decided it was about time to go back to the choir Mass since it has been a LONG time since I have seen some of those people. I have either been working on Sundays or going to 9:00 with my parents so I have more of the day to do stuff. Since it had been so long, I figured that I would just sit wherever there was room, recalling
this incident . That lady wasn't there, so I did sit in "my spot", but she came late, so I calmly and quickly moved over :o)
This afternoon, I helped with my hospital's annual "Perinatal and Pediatric Memorial Service". I have helped with other bereavement things like making sure cards are sent to families after their child passes away, but this was my first time to attend the Memorial Service. I was looking forward to being a part of it. Earlier in the week, I received a preliminary copy of the program with the part that I was going to read. I noticed that the reading was to be Psalm 139. Next to that, it read "Very Good Reader"...apparently, they wanted a "very good reader" to do that. When I saw that, I thought
I am a very good reader :o), but decided to wait and see what happened. So, today I "nonchalantly" asked the chaplain who would be reading it. He said that the person who was going to read it was sick, so he was going to do it. I asked if I could read it since I am "a very good reader" :o) He was a bit hesitant, so I told him I would practice it for him. He acted like he would be okay without that, but I did it anyway. Psalm 139 has a very special meaning to me now and it was an honor to be given the opportunity to do that reading at the service. Only one person shared during the "time for remembering", but in talking to a couple people and seeing how they were affected by the service, I think it was a very special time for these families. It was a blessing to be a part of this, even though I didn't really end up visiting with many of the families.Before I left for the service, I sent a quick email to the parents of my "A" girl letting them know I would be around this afternoon if they needed to make a "Target run". I'm not sure where the idea came from, and wasn't sure if they would take me up on my offer, but it was out there "just in case". I was pleasantly surprised to have a message from her mom when I was done with the service. Apparently, they had been discussing how to make a run to Target without a car. I was an answer to their prayers, they said...WOW, what a blessing that was to hear! Something SO simple to me can make SUCH a huge difference to someone else. (To be honest, I wanted to see her, give her a hug, and visit with her anyway, so it wasn't really a "selfless" offer...she has been SUCH a blessing to me!)
I had made plans to attend a birthday party for "the baby" who will be turning ONE on Tuesday! Yes, the same "Baby" I wrote about
6 months ago today when doctors thought without a transplant, he would die in a day or two. Look at him today!!

Before the party, I decided to have "family dinner" with my parents, sister, and brother-in-law (tuna casserole, of course!). When I was about to leave for the party, I received a call from the charge nurse at work. Little "E" was not doing well. Her heart had stopped earlier in the day. They didn't think she would make it through the night. Her mom was alone. Her husband couldn't come until late tonight. There wasn't really anyone who could sit with her.

This little girl who took her first unassisted steps last weekend when I was her nurse was not going to make it through the night?! Her mom was alone?! But, the birthday party was SO important to me. His mom is my friend too. I sat holding her hand for HOURS as we prayed, watching his blood pressure, wondering what God had planned for him. Today was a very special day to celebrate his life. But, could I feel "okay" knowing that I easily could have gone to the hospital to support this mom and didn't?
I decided to "stop by" the party before going to the hospital. I told my friend what was going on (even though I didn't really want to spoil her celebration, I kind of needed to hear from her what I should do). She told me to go, and to let the mom know they were praying as well. It was only three blocks to the hospital, but I cried the whole way. What was I going to find when I got there? Am I strong enough to do this? Would she even REALLY want me there? I could not do this alone, and so I prayed (and sent a text message to someone I KNEW would immediately cover me in prayer and let me explain later...thanks Kristy!).
I didn't know which room she was in, where her mom would be, or what the circumstances were. So, I tried to get some information from some of the PICU workers. Of course, they all ended up being people who don't like me for some reason. They all said that the mom was fine, she had people with her, and basically I wasn't needed. Ok, fine, I'm okay with that, I guess. So, I stood staring at the elevator for a minute or two wondering if I should just go find her and risk facing more of the same unkindness. As I was praying about what to do, her mom came out of the ICU to use the restroom. Oh what perfect timing! She was glad that I had come, and invited me in. At that point, her daughter had stabilized a little bit with better blood pressures. I suppose things are still "touch and go", but there is still some hope that she could possibly pull through this. I stayed for a while, but her mom was there, her husband was coming, and she was looking a little better, so I headed back to the birthday party.
I had a nice visit with my friend and her husband. Hopefully I will be able to spend some of Tuesday with them since I was a bit of a wreck today. I shared with her my feelings about "the list" and how frustrating that is for me. I think my biggest issue with it is that I preferred it being more of a private relationship. And, I still want to be able to have a "choice"...I don't think that should be taken away from me (especially, since there are other patients I like whose parents would probably have me on "their list" as well...so, whose "list" has more "power"?! I think this could become an issue!)
Sometimes people think that I get "too involved", so it is better to not make a really big deal out of having a "special relationship" with my patients. I may get really "involved", but don't think there is any "too" about it. Sure, it makes for some pretty emotional days, but I have been blessed because of the days that come before and after the sad ones. There some kind of saying "It's better to have loved and lost than to never have loved at all"...would I take back those days of sitting with my friend wondering if her son would die without a transplant and miss the joy I have in seeing him today? No way! Would I take back experiencing the joy of seeing "E" take her first steps with her mom last week to take away the sadness I feel when I today could be the last time I see her alive? No way! Working with these kids and their families is a huge blessing to me, and I feel like this is where I am supposed to be. Plus, more than once, I have heard that when parents feel like their nurse cares deeply enough about their child to even shed a tear or two, it makes a HUGE difference.
And so, tonight I am sad. Yes, I have been crying. No, they are not "my kids", it is not "my family", but my heart still hurts, and I don't think there is anything "wrong" with that.
Prayers to all of these families, and to all those families who have allowed me to be a part of their child's "story".
Good night.