Still Fighting

Little E is still fighting, and somehow, her mom is able to keep a sense of humor and smile even in the midst of hard times. Someone, I'm not sure if it was mom or not, gave her pigtails. So, her mom titled this photo the "Cutest Little Sick Baby Ever!!" Only God knows the plan for this little girl, but for now, her mom has hope, and the prayers continue. Thanks to all who have stopped by and prayed for her. Even though her mom will probably never know, I do, and appreciate them very much.

Looking at this, I realize that I have a lot to learn. I thought that I was doing better at "putting things into perspective" and "not taking things for granted", but apparently that is only "sometimes" (and probably more in retrospect than "in the moment"). My day at work was not very fun. In fact, I'm pretty sure that the words "I hate today" came out of my mouth. Well, considering I was taking care of kids in the HOSPITAL who have PARENTS who have sick kids in the HOSPITAL...I'm pretty much thinking that other people's days were probably WAY worse than mine! I couldn't even exactly say what made today so bad, especially since I worked with GREAT people who stepped right up and helped, even without me asking. Today there was a LOT of teamwork going on...so, that means it should have been a GOOD day! Maybe I am just ready for a vacation...family reunion next week!

I should go to bed since I work again tomorrow. I had a hard time falling asleep again last night, which is SO crazy considering it seems like I can usually sleep anytime, anywhere! I didn't accomplish much of anything since I got off work nearly 3 hours ago. I had some work to do, and my house needs some MAJOR attention! I guess that will have to be done "tomorrow" :o)

Good night.

Quiet Night

That is the only update I have from this morning. Prayers that it was a "quiet day" as well. Thank you for your continued prayers. Very sick little ones "goes with the territory" as a pediatric nurse, but it doesn't make it any easier and prayers are definitely appreciated.

(On a side note in case I have any "new" visitors...it always makes me nervous writing about my job on my blog. When I started this blog, I figured that a lot of what I had to say would be about work, since I don't have a boyfriend, a husband, a dog, a cat, a kid...you get the idea. Because of that, I chose to make this as "anonymous" as possible by using very little detailed information, and no full names or locations. This way, hopefully no one would be able to use this blog against me for breaking any privacy laws. Obviously, if someone REALLY wanted that kind of information they could probably figure it out! Anyway, this probably was completely unnecessary, but there it is anyway!)

On a MUCH happier note, I took today off so I could attend a wedding. The couple has been helping my dad coach basketball for years, she went to my elementary school and high school, and is on my softball team. They are quite a bit younger, but one of her brothers is a year older than me, and one of her sisters was in my sister's class. So, we go "way back"! :o) The wedding was nice, except I was a little distracted by the two little kids next to me. Their mom decided it was appropriate to give them large pieces of bubble gum as soon as the service started. During the sermon, the little boy started choking. It was hard to tell if he was still moving air or if it was really stuck. So, rather than listening to whatever words of wisdom were being shared, I was wondering if I'd have to figure out how to revive a kid with a piece of gum stuck in his throat. Although I am NOT a mom, so shouldn't REALLY say that I'd "never do that"...I REALLY don't think I'd give my kid gum to chew during church (I think the mom was chewing gum too, so who knows...maybe I'm just "old-fashioned".)

Instead of cleaning up the mess in my living room this afternoon before the dinner reception, I just "hung out". Yesterday wasn't a great day at work, so I guess I decided that today I "deserved" a break. My student decided to work with someone else today so it was her last day, instead of tomorrow being her last day with me. I kind of struggled with this student and think I was ready for our time to be finished. She will be a good nurse, but probably better somewhere besides my floor. Or, maybe my heart just wasn't into teaching these past few weeks. I hope my manager doesn't ask me to precept again for a little while. I'm feeling a little burned out and don't think I would give them as good of experience as I should.

So, back to work tomorrow. Good night.

All I can say

is please pray. This morning, her mom was told to call the family to come say good-bye. This afternoon, she remained critical, but stable. Tonight, all I know is her mom requested a friend write a prayer for all to pray. What follows is that prayer (with her name changed to simply "E"). It brought tears to my eyes...this little girl is SO sweet. I admitted her to the hospital when she came to transplant evaluation, and again when she got the call for transplant, so I have a special little "bond" with her and her precious mother.

"Father, we thank you for E, a radiant soul, a model of innocence and a pillar of strength. She has suffered so much in her short life, but not in vain. Each trial she has encountered has allowed us to grow in humility and unconditional love.Yet, Lord we are weary and in distress because E is so ill and weak. Please, hear our plea for the healing of Your precious daughter. Jesus, You told us, if two of [us] agree on earth about anything for which to pray, it shall be granted to [us] by [our] heavenly Father.” Matthew 18:19. At this time, especially, we find great solace in these words and we believe that by uniting in prayer, E can and will be healed. Therefore, we lift up, with one voice, and with a faith that can move mountains, our supplication for the recovery of darling E. Come to our aid and restore her to full health. May we witness a miracle, like the rising of Jairus' daughter. Divine Physician, cure her of all her afflictions. Oh, Lord, we beg of you, please have mercy on E and may it be Your holy Will that E live a long life and serve as a testament to your saving power and glory.We also ask for grace for the entire __ family. Come Holy Spirit and guide the __ family to a peace the surpasses all understanding and hope for a brighter tomorrow. Amen."

Thank you. Good night.

Was this "Day 3"?

So, I ended up not having to work today. That meant that, once again, I didn't get that extra money that I could use. However, it also meant that I had the day off! My sister had a party at her house this evening, so I was able to go early/on time rather than late. So, that was fun to go and support her (I did spend quite a bit of money, so it would have been nice to balance that with a bonus check, but oh well!).

I went and worked out for the third day this week. The "smart" machines told me I wasn't doing my best and need to work harder next time...I'm kind of thinking I could "hear" that more often than I should! After my work out, I went to a coffee shop with a friend from there. We visited for over an hour which was nice. I was kind of hoping I could talk about some of the issues I wrote about yesterday, but we discussed more of what was going on with her kids. Her daughter will be a sophomore this fall and is changing schools. My friend wanted her to go the the high school I went to, but she is going to attend one of the other all-girl schools, which I think is okay too :o)

I took a couple short little walks, but it was pretty hot, so didn't stay outside long. I am nearly done with my shredding project, but created a large mess in the process of organizing papers from my work committees. I ended up stopping that project so I could take care of some other work-related things. So, once again, I am surrounded by piles of papers! A "work-in-progress" for sure...I may need to have another party (or, maybe my upcoming "home study" will be enough to light a fire under me...but not a REAL fire because all these papers, well, paper and fire are not a good combination in most circumstances). I hosed down the double-stroller my co-worker gave me and left it to dry in the front yard. A thunderstorm along with a nice down-pouring of rain came rather quickly and it took me quite a while to remember that something was trying to DRY out there...so, I brought it up to the porch until the rain stopped, and I guess it will dry tomorrow!

So, it sounds like I actually had a fairly productive day. During one of my rounds of blog-checking, I was given a gentle little reminder that sometimes I need to let God be the planner and not interfere with His work, or ask too many questions about how or why He is doing things that way. He will let me know if He needs help, right?! Anyway, I remembered that I had this book mark that said something related to "being still". I don't recall where I got it, but I knew where to find it (since I HAVE been sorting through things recently!). It is simple, but good.

LET YOUR GOD LOVE YOU
Be silent.
Be still.
Alone. Empty
Before your God.
Say nothing.
Ask nothing.
Be silent.
Be still.
Let your God
Look upon you.
That is all.
He knows.
He understands.
He loves you with
An enormous love.
He only wants to
Look upon you
With His Love.
Quiet.
Still.
Be.
Let your God--Love you.

Back to work tomorrow, so I better get ready for bed. Good night.

Questions

I will have my first foster parent home study in two weeks. I'm not exactly sure what this all entails. I have no idea what I am supposed to "know" by then. Do I have to have "day care arrangements" all figured out before then? Do I need to have all of the "what if" scenarios worked out? Remember, I am a single person with a full-time job that I love. I have heard some talk that this can be taken care of, but I'm not sure if it is ALL the time, or how long that would take. When I talked to a co-worker who adopted two children from foster care, she said that they are "desperate" for foster parents, especially those who can take "special needs children" so will help as much as they can to make it work. I guess I will soon find out.

Last night as I sat outside with my parents, we did a little "chatting" about this issue. I think my dad asked about when I was getting a kid, or something like that. I told them when I was going to have my first home study. My mom said something like "so, you are just planning to do respite care, right?!" Well mom, maybe and maybe not. This part is SO tough for me and it brings tears to my eyes thinking about it. I LOVE my parents and spend SO much time with them, but am not really "feeling the love" with this. I think that is why it has taken me so long to go forward with this...their apparent lack of support, especially from my mom, has made it much more difficult for me. I have pretty much done as I was told, followed all the rules, stayed "in the box", rarely questioned authority, or strayed far from the norm. I almost feel like making this decision (even if I'm not really sure what the "decision" will be) is letting my parents down in some way. Almost like I am disobeying them. Considering I never really did that, it is not a comfortable place to be.

Then, I wonder WHY? Why do I really want to be a foster parent? Is it actually for more selfish reasons than I am willing to admit? Am I kidding myself in thinking I could really do it? Is it worth the risk of isolating myself from my family...even though I don't think they would really abandon me because they love me too much...I am going to have to look that person in the eyes and tell her that I will do this with, or without, my family's approval. I feel so torn, and it hurts...

One thing I know is that I was BORN to take care of young people. That is why God made me the oldest grandchild and surrounded me with lots of cousins and other children. Starting in middle school, I cared for children who were in foster care. In high school, my family did respite care for two sisters. So, I have "known" for a while that some day I wanted to be a foster mom, even if I had to do it as a single mom. I have been "playing mom" since before I can remember. Now, I feel like I am ready to "play mom" for longer periods of time to a child who needs a safe and loving home, either temporarily, or permanently. I'm not sure if my head or my body is ready, but I believe my heart is.

Right now, we have one of those kids on the floor whose parents are less than attentive. These are the kids that the nurses decide needs a new home. Whether or not the state agrees is a completely different story. Someone (or lots of someones) will say "oh I could just take him/her home!"...but not REALLY mean it. I wouldn't completely rule out taking a patient from my hospital home, but it could make things more complicated. In any case, I decided to take this child for a "test drive" and got a little "snuggle time" in this evening. This particular child has LOTS of medical issues, many that remain unknown and undiagnosed (she also still has a mom and a dad!). This kind of child may NOT be the best-case scenario for first-time foster motherhood, but I suppose time (and God) will tell...my heart is open, but I have to remember that sometimes I will need some help.

I am sure this isn't going to be the last time there are tears about this. Thankfully, I have a few places I can go to get some extra prayers when my home study date gets closer! For now, I am tired and do not know if I will "get" to work tomorrow or not. I am on the schedule for "bonus" but have no idea if I will be needed or not. I guess I will find out at 5:30, so should head to bed.

Good night.

No Excuses Day 2

...is not a good title for today. Today was nearly full of them. The biggest one, which is "my story and I'm sticking to it" is that it was nearly 100 degrees and kind of humid (we are currently having a thunderstorm) and who wants to do ANYTHING when it is like that?! I surely didn't, and so I didn't.

I did make it to Curves for my second day in a row of this new work out thing. I'm hoping it works because I'm not sure how much longer I can pretend like being overweight does not bother me at all. Of course, probably eating a hot fudge sundae from McDonald's for lunch wasn't the BEST choice, but it was pretty yummy!

Just in case someone out there follows their "site meters"...yes, that was me that visited your blog 100 times this morning...yes, I may have a problem, or maybe you wrote something really cool that I had to read LOTS of times :o) Anyway, that was while I was in my "waiting" phase of the day...I COULD have been doing work around the house, but I had no idea that I'd be waiting for two hours (okay, that's my excuse, although I will not say that I would not have done the same things had I known I had two hours to work!).

I took my friend's girls to a place where you can paint pottery. The baby is doing pretty well, although he seemed pretty fussy when I saw him (again, it WAS nearly 100 degrees and he was in a car seat, plus it looks like he is teething). He pulled his feeding tube out, so I put it back down, but my friend had to put it back in since he pulled it out again on the way back to their room. NOT fun times...so it was "extra good" that I took the girls for a while. We had fun, but have to wait until next week to see how our projects turn out. I did not get any artistic or creative genes, so painting pottery isn't something that I would normally choose for an activity, but I thought they would enjoy it. It was a little stressful for me, and I'm thinking the five-year-old's looks better than mine, but I tried! It also was a little expensive to do pottery for four, but I think this was something important to do (and hope my friend isn't stressing out about paying me back for it...the oldest did see how much went onto my credit card...).

I ended up taking a short nap after the pottery/McDonald's excursion (just because I'd already messed up the "no excuses" part of the day!). My softball team WON tonight!! It was SO much fun!! I actually got on base all three times (even though only one probably would have been considered a "hit). I put my wheels on and made it to second base before the throw made it from the shortstop there (not bad, if I do say so myself!).

Well, there is quite a storm happening outside...it is only 10:00, but I'm thinking I may go to bed and listen to the thunder for a while and fall asleep to the rain...I LOVE thunderstorms!! (except ones that make trees fall...I don't need any of THAT!)

So, tomorrow I go back to work. Haven't been there since Saturday, so this was a good break!

This little one could use some prayers tonight. She is struggling with some complications after transplant, and needs all the help she can get.

Thanks. Good night.

No Excuses Day 1

Okay, so my "closing remarks" from last nights journal was that this was to be a "no excuses week". Then I had to laugh, because that doesn't sound like something I will actually be able to do, but "Day One" wasn't TOO bad!! I managed to keep myself from taking a nap, even AFTER getting up in time to be at the hospital for a meeting by 7:30. So, that sounds like a good step in the right direction (although I am thinking I will have to type fast because I'm pretty tired after skipping the nap!)

So, I had a meeting at the hospital that went until a little after 8:30. I decided that I wanted to meet with the PICU manager before I left about this whole "bonus shift thing". Using my manager as a "go-between" obviously was not working that well, so I figured I better go to the person who can help me. Unfortunately, he was not available on the unit when I got there, so I had to wait until nearly 9:30 to talk to him. However, since we got some things figured out, I guess it was a good use of my time!

Then, I went to Curves. Remember how I said I didn't really want to do this new program because I like going there for social reasons, and often don't work very hard?! Well, the number on the scale was higher than it has ever been. SO, I didn't really have an excuse to say "no thanks, I don't want to have a more challenging work-out, I would much rather stay overweight!" And, work my tail off I did, but it did feel pretty good.

After that, I had to mow my lawn. Luckily, it didn't get as hot as I thought it was going to, or it would have been a bit much for me!

Take a look at that nicely mowed lawn!!


A little closer up...it looks like I should probably clear off my porch a little bit. Have no fear, I did water the plants a little bit today...the have been neglected, so I am pretty surprised there are any flowers left at all!

I don't have a LOT to show for myself for what I did the rest of the day, but I was fairly productive. I unloaded the dishwasher and emptied the sink (my house was smelling kind of nasty, so this was a chore that was WAY overdue!). Then, I decided to do a whole bunch of "shredding". I had a box of stuff that needed to be shredded. I figured that getting rid of that would make room for some of the papers that are just "hanging out" waiting for a home. Unfortunately, my shredded pooped out on me and was doing a little bit of "smoking". So, I went to Target and bought a new one. While I was out, I also stopped at the cable place to see if I could get a better deal. I feel like I am paying SO much for not very much stuff (I have basic phone, basic cable without DVR service, and the Internet). I ended up downgrading how fast my Internet speed is which is a nearly $15/month savings, so now I hope I cannot notice a difference.

I emailed back and forth with my sister for a while. She gets kind of bored at work, and they are allowed to check email, but not use facebook or send text messages. So, that was fun.

I helped my dad with his softball games. Both teams lost, but they were close games, so it was fun. We watched some baseball at his house before I headed for home.

That's pretty much today...not QUITE as much stuff as I could have/maybe SHOULD have gotten done, but at least I didn't sleep the afternoon away or anything like that :o) Not sure what I will try and get done tomorrow...maybe I can finish my shredding (I kept having to give the new shredder a break so it wouldn't start smoking too!).

Extra special prayers to all the families out there missing their little ones tonight. I am sure I have a couple notes to send...I had been doing a pretty good job at sending cards to families at certain "milestones" after their child (former patients) passed away, but have gotten kind of behind in doing that. I also need to write to a couple of my friends...I think my college roommate was due to have her fourth baby some time in July!

Okay, it is now after 11:00, which is kind of my unofficial "bed time", so I'd best be headed there (especially if this "no excuses" plan also means "no naps!"). Good night.

Along for the Ride

Today was the wedding shower for one of my cousins. She is the second "cousin" to get married, and also is the second daughter in her family (my sister, the second daughter in OUR family was the first one to get married!). The shower details brought some "drama" and hurt feelings to some members of my family for quite some time. The shower was held in my mom's home town which is a 2 1/2 to 3 hour drive. It happened that my mom's "favorite" aunt was celebrating her 80th birthday yesterday in a town pretty close to her home town. I had to work yesterday, as did my sister, and one of my other cousins. So, the three of us had to do a "day trip". I thought that ANOTHER cousin (one five years younger, but is the "planner" and more of an adult in that way than I am!) would come with us...and drive us. However, she had yesterday off, so went up early. That left the issue of how the rest of us would get to the shower. I do not like to drive. My sister HATES to drive, and would have refused to go if that was the option. Our cousin is apparently directionally challenged (she is 21). So, instead of stepping up to be the "grown-up" (after this issue was resolved, I reminded myself that I am nearly 29 years old and the oldest grandchild, so really should be responsible!), my mom decided to go to the birthday party yesterday, come home for the night, then drive us up and back today. With gas prices the way they are, this is pretty darn crazy! However, it was important to her that my sister and I got there without stressing out. It was also easier for her to deal with the earlier "drama" doing it this way.

So, along for the ride we went. My sister rode "shot gun" (see, I can be a nice sister sometimes!). My cousin and I rode in the back seat. Her sister joined us for the return trip (three "adults" in the backseat of an Accord...good thing none of us is over 5'4"!!). My mom "swears" this was not a big deal...I think she is AWESOME! :o)

The "after shower" was even more fun than the actual shower part! The hostess has a pool in the back yard. None of us "travelers" brought our bathing suits, but that didn't stop us from putting our feet in. We had some yummy "girl drinks" and visited (four aunts and six of us cousins). I was already looking forward to our family reunion later this month, but now I am even MORE excited! Even though it would be even more fun if everyone could go, but if this afternoon was any indication of how much fun we will have, it is going to be GREAT!!


Some of the cousins. Missing four girl cousins
(and of course the eight boy cousins!)

Sister, cousin, me :o)

Just me and my sister!

Five aunts, the hostess, and the bride-to-be

Tomorrow I have a meeting at 7:30. I think I should set some organizational goals for tomorrow. It should NOT be so hard to get motivated when I have four days off a week! I think I should try and make this a "no excuses" week. Wish me luck :o) Good night.

Edited to add: Ha ha! Look what showed up as the "Quote of the Day" after I posted this...

"After all is said and done, more is said than done." ~Aesop

Ahh, such truth...especially when it comes to doing things that are not fun or exciting! Okay, better get to bed now :o)

Gratitude

"Gratitude unlocks the fullness of life. It turns what we have into enough, and more. It turns denial into acceptance, chaos to order, confusion to clarity. It can turn a meal into a feast, a house into a home, a stranger into a friend." ~Melody Beattie

As much as I would like to say I always do kind things because it is the "right" thing to do, I have to admit that I appreciate a genuine "thank you" as much as the next person!

Because I know how much it means to be thanked, even for doing things that ARE just the "right thing" to do, I tend to hand out thank yous freely. Even though I can be quite crabby at times (just being honest, sometimes "at times" occurs more frequently!), I do try and thank people at work who help make my job easier, and those who do the little things that make the hospital work more efficiently (the person who delivers the medications, the one who picks up specimens and brings them lab, the housekeeper who does more things than I can count...there are SO many people working together for the common goal of taking care of patients and their families!). I enjoy showing gratitude to people who must often feel like they are in a "thankless job". Being in a job that can feel like that sometimes, I know first-hand how much a little thanks can make a HUGE difference in how the rest of the day goes.

My parents taught me early about writing "thank you notes". I learned that people should not continue to give you things if you do not thank them (luckily not from "first hand experience"...I have always liked writing notes!). In fact, today I mailed three thank-you notes...one to the couple who got me tickets to the swimming events, one to the couple who stored my frozen food so I didn't have to throw it away, and one to my parents for ALL of their help cleaning up after the storm. Now, did any of those people EXPECT to receive a "thank you note" from me? Probably not, but I definitely think they will be less likely to hesitate the next time I need help with something because they know I appreciate their efforts!

Whenever I send sympathy cards, one of the things I usually write is thank you to the person for sharing their loved one with me. To me, it is very important for them to know that I appreciate all that the person's life was, no matter how short or long it was.

I enjoy doing the unexpected...sending random "thinking about you" cards, sometimes saying really corny things to people because something nice and cheesy pops into my head. One of the first times I remember doing this was when I was in high school at a Christian leadership camp. I really liked one of the leaders. I think she reminded me of an older friend I had, but I thought she was pretty. Now, this person probably was probably "average looking" to most people, but in my eyes she was beautiful. So, with tears in my eyes because I felt like such a nerd, and also because it was coming from the heart, I said something like "I think you are SO pretty". It really took her by surprise, and she probably was thinking something like "no WAY, not ME!" However, now that I am probably even older than she was at the time, I'm thinking those words stuck with her for a while, and made her look at herself a little differently. I know how much of a difference little things like that can mean to people. A little bit of kindness can go a long way...so can a little bit of gratitude. "Kind words can be short and easy to speak, but their echoes are truly endless." ~Mother Teresa

It still makes me sad that I had to post this journal entry. I had sad days before this, have had sad days since then, and am sure there are more to come. However, I still think about those days, and about the wife left without a husband, the children without a father, the grandchild without a grandfather. But then, what a blessing to have been a teeny tiny part of each others' lives. My hospital has a program rightly called a "Thank You Program". Through the Intranet, or a written form, anyone can send a "thank you" to any employee at the hospital. The message is sent to the employee's manager, and a little medal is given to the employee. Each medal can be redeemed for $5 for various gifts or services. It is a program that not many people outside of employees seem familiar with, and some units/individuals use it more frequently than others. Today, I received a "thank you". It reads "Thank you so much for being exceptionally kind when (Her Husband) was hospitalized. Even though you were 'floated' to an adult unit when your comfort zone was more with Pediatrics, you were so delightful and made us laugh and feel relaxed. Thank you for just 'being you'!" I opened it before my shift started, so I had to hold back the tears, but it was tough. I didn't expect that, and it wasn't really necessary. I was just doing the best job I knew how to do (and, probably using laughter and silliness to help me be less nervous about the situation I was in).

So, just in case I forgot to thank someone today, I will say "thank you" now. Tomorrow is another day...let me not forget to show my gratitude to all who come into my path.

Good night.

Whole lotta nothing

That's what I did today. I am actually a little annoyed at myself about this, which actually doesn't help matters. I slept in, and then later took a REALLY long nap...I don't see any reason for me to be this tired...it seems like I do a heck of a lot more sleeping than the average person, and definitely more than should be necessary. Maybe I use sleep as an escape from all that needs to be done, but I DO usually FEEL tired when I lay down so it is hard to NOT take a nap because I'm not doing anything anyway...sometimes I feel "bored" so I just take a nap, but obviously it is only boring because I don't want to do any of the not-very-fun stuff that I should be doing.

Anyway, I had a box of macaroni and cheese for lunch and popcorn and ice cream for dinner. So, maybe I became a "bump on a log" from all the junk I put in my body on a regular basis, or maybe I just AM a "bump on a log" and the food is an entirely different story. Who knows.

Curves is implementing a new program that will require me actually to WORK when I am there (like, maybe work up a sweat instead of just working my mouth). I'm hesitant because I kind of like going there for the social aspect. It also will cost me about $5 more a month. I am thinking that it wouldn't really hurt if I got more out of my workouts, and maybe lost a little weight in the process. So, I suppose I should just "go for it"...but maybe I will wait until after my family reunion to join!

I can hardly believe that I am TIRED (seriously, I think my "nap" was close to three hours, and I was in bed for over nine hours last night...my sleep was a little interrupted, which is a nice excuse, but probably not the only issue!). But, I am working tomorrow, so it is "bed time" anyway.

Wow, what an exciting post...I guess when you do nothing, you have nothing to write about. My dad did come over and help me clear the rest of the branches from my backyard and get them to the curb for pick-up...and I delivered some of the jewelry from my jewelry party. I also watched a movie. Those were the only times I moved from a place with a cushion and/or a pillow.

Good night!

Proof

That miracles can happen.

This is the baby even before he was at his "sickest"...this is actually better than he looked the first time I met him.

His parents called this his "tree of life". This photo does not include the ventilator or the dialysis machine that also helped keep him alive for weeks.

Recovering...but one of the first times mom could hold him after transplant.



.

First time to lay on grass

First car seat ride...out of the hospital for the first time ever. Notice the cute frog overalls, courtesy of yours truly :o) Such a sweet friend!

This afternoon, his two oldest sisters and I went to see Kit Kittredge: An American Girl Movie . I thought it was a REALLY good! It did bring me near tears more than once due to the nature of the story (the sadness of the Great Depression). I think both girls liked it, although I'm not sure the five-year-old would have. There actually is quite a detailed story line, so I think kids probably eight and up (or, maybe a "mature" six- or seven-year-old GIRL) would enjoy it the most. And, it isn't one of those kids movies that adults have to "suffer though". It was very intereting and enjoyable to me as well (even though I'm not actually that picky about movies!).

The movie was a nice reprieve from the stress of my meeting. It was not that great of experience (although, the issues actually occurred AFTER the meeting was over, so there were only three of us). One of the people on the committee has an argumentative/opinionated/headstrong personality. I actually think she enjoys having "discussions", especially when she can do all of the talking. That does not prove to be a very good combination with me being pretty "docile". We spent twenty minutes "arguing" over something that ended up needing absolutely no discussion at all. It was SO frustruating being a part of that "conversation". So when the actual issue came to the forefront, all I could utter was "WHY didn't you say it that way TWENTY minutes ago?!?!" All she would have had to say was that a couple people brought an issue to her that they wanted brought to our committee, and I would have added it to next month's agenda. Easy, right?! No...we had to DEBATE about why this was an issue, bringing up examples from three years ago...argh! Even though I have vented about this multiple times since then, it is nice to get it out this way! Of course, then I HATE making people feel bad, so my stomach was in knots for hours until I finally decided that what was done was done...and even though I wasn't as nice as I usually am, it did kind of need to be said. That was ridiculous, and maybe she will think a little bit more before presenting information the next time. (The worst part is, she is my "co-chair"...at least when she becomes "chair", I will be done with my term!).

Anyway, I guess this whole "bonus" thing still isn't working very well for me. However, if someone on my floor or the PICU calls in sick tomorrow, they will call me to work. So, I suppose I should get ready for bed.

Good night!

P.S. Sorry about the formatting...I fought with it for over 15 minutes without being able to make it "perfect", so it will have to stay as it is. The pictures are more important than the words anyway :o)

Sorry to disappoint

my three readers, but the pictures will have to wait until tomorrow (or later). I just talked to a college friend on the phone for over an hour. We hadn't talked in MONTHS and her birthday is tomorrow. So, I'm thinking that friends take priority over blogging...plus the fact that I have a stack of policies and procedures that need to be read before my 9:30 meeting.

So, time to go try and keep myself awake reading about such exciting things as "Weight Trending of Hospitalized Patients", "Infection Control Policy Template", and "Prevention of IV-Device-Related Infection"...wish me luck :o)

Good night.

Scientific Study I am sure!

78%How Addicted to Blogging Are You?

Created by OnePlusYou

I was hoping to do an actual post tonight, but it is after 10:00, I still need to shower, and have to be at work at 7. So, I guess the baby pictures will have to wait until tomorrow. Laurie, I looked back to see if I had previously posted a photo of my house (I was going to have you go on a scavenger hunt to find it, but don't think I have posted one...darn, that would have been fun sending you on a wild goose chase!) In the meantime, I found a survey I took last August 1. At that time, I was "57% Addicted to Blogging". I am VERY surprised that that number is now only 78%, but I'll take it. I also will post an "old" picture of my house to tide you over. It doesn't look a WHOLE lot different now, but I have made some changes.

A big thank you to "my two readers" who commented on my last post. You ladies are great! Marcie, I'll have to send a comment in response to yours, but like I wrote five minutes ago, I really should be getting ready for bed!

Also, if you could say a tiny prayer for my tiny finger on my right hand. I tagged a girl out at home during my softball game (SO fun! I LOVE being able to do that!) and did something crazy to my finger. Not sure how it happened, but I have a bruise and a little "nail issue" (which, I suppose being a nail biter doesn't make that too tough!). Good thing I don't have to type for a living because it is a little sore...I do, however, think I will live :o)

My little house on the hill...VERY exciting!

Good night!

Drum Roll Please

Okay, so this was going to be a SUPER GREAT post! It still will be GREAT, but circumstances as they are will prevent the "SUPER" part from happening tonight.

Are you ready (all two of you who visit this blog on a regular basis)?!

The baby, yes, the one I have written about many times, including here when he was nearly too sick to be a transplant candidate, here when he received his "Gift of Life", here when his mom got to hold him for the first time post-transplant, here when he was off dialysis and the ventilator (the first time),and here when he was really done with the ventilator, is OUT OF THE HOSPITAL!!

Yes, after nearly nine months in the hospital, the baby can go wherever his mom wants to take him!! His mom is SO sweet, she decided to dress him in an outfit I bought for this special occasion. She told me she was saving it for a special day, and she couldn't think of a more special day than this. That thought brought tears of joy!

I was supposed to work today, but ended up getting the day off. So, I was thinking I'd be able to go to the Ronald McDonald House and see him once he got there. However, he didn't get discharged until around 7:00 when I was at my dad's softball game. I can't even imagine the emotions they are going through having him out of the hospital, being solely reponsible for him for the first time in his entire life! So, I decided against stressing her out and showing up unannounced at the House. (I'm sure she would have made it be "okay", but why do that to them?!)

So, I'm thinking that a picture or two (ha ha, or twenty!) were taken today with him in his special "going outpatient outfit". That would have been SUPER GREAT to post, but it can wait for another day.

Of course, with a transplant, especially the kind he had, and how sick he has been, there is always the possibility he will be sick again and have to be hospitalized. For now, though, they are going to celebrate each day he can live life as a "normal baby" just as they celebrated each day he was still with them when the outlook did not look good.

In other "exciting news", I went to Curves for the first time in a couple weeks, did a couple loads of laundry, finished my self-evaluation, sent the agenda for my Thursday meeting, and checked my email and "blogs" about a hundred times. I got to coach third base for both of my dad's games (both pretty exciting...one team lost after they came back and nearly won, and the other one won after nearly losing it). They got over just before the sky opened for another huge rain storm.

Tomorrow I get my new windows--yay, except for the part about having to pay for them! I'd better head to bed. Maybe TOMORROW I will organize my stacks of papers and send a few cards (my best friend from college has a birthday on the 10th and I haven't sent a card, or talked to her in months!).

Good night!

Hog Heaven

That's what my mom says about some of the "perks" we get for being related to her! She is an "executive assistant" to a VERY nice guy who, because of his generous donations, happens to have access to lots of really cool things. So, we sometimes get to live in "hog heaven" during athletic events with "prime" seating. As my mom said, often it is my dad who gets to be in "hog heaven" but this time it was my turn :o) What an unforgettable experience (as have been the many other "really cool opportunities" I have had because of my mom and her VERY hard work!).

Last Tuesday, I got to go with my mom to watch athletes compete for a chance to go to the Olympic Games. Since, the chances of me actually ever ATTENDING the Olympic Games, I decided that this was an opportunity I didn't want to miss. (I did have to skip my softball games which I felt badly about, but there will be more of those!) Mom and I had a great time, and saw some world and American records broken...awesome!

Friday night at the baseball game, I got to sit with my feet on the first base dug out...loved that (very easy to check out the good-looking baseball players!!). Another "mom's work perk" :o)

Today, I got the day off work (I was on-call until 4:00 and hoping the whole day they would not call me in!). So, tonight, I got to go back to the pool with my aunt to see some more swimming events. This time, we got to sit in a "suite" with appetizers and free drinks. I had prime seating to watch "Lane Four" which I discovered last week has the person with the fastest preliminary time. There were only two races tonight, but I believe American records were set in both events. (I should note that this WHOLE thing is EXTRA amazing to me considering I "probably" would be able to keep myself afloat in the water and prevent myself from drowning. So, swimming is definitely not "my thing".)

View of one of the races from my seat...not too shabby! Great job guys!!

Athletes on their way to Beijing. Go Team USA!!

Tomorrow, I should be able to report on some other AMAZING news. I don't want to "jinx" anything, so will wait until it actually happens...I promise it will be worth the wait :o)

Back to work tomorrow. I'm actually thinking that I wouldn't take "on-call" if it is offered to me. I suppose there is a lot more stuff I could do tomorrow that I decided not to do today (including my self-evaluation from work that was due "the end of June"...oops!).

Good night (hopefully I can sleep after all of this excitement!)

Song

One of the transplant moms used this song in a slide show of photos. She included photos waiting for transplant, and sending her daughter into surgery. It is really beautiful. When I searched for the lyrics, I found a site where I could copy the song and paste it here. So, that is what I did. Enjoy. (and you may need a tissue)


Read A Mother's Prayer lyrics

Coincidence?

I think not!

I was feeling a bit overwhelmed today with all of the work-related things I need to do, and also all the house-related things that I never DID do before my party (and became a bigger mess after the storm and not having electricity for days). I did get my freezer stuff back from my parents' neighbors' house (what a blessing THAT was that I didn't have to buy all new food!). I also mowed the lawn, and tried to solve my problem with an unworking battery in my lap top.

I decided that I would be more successful in staying focused on my work stuff if I left my house. So, I packed a bag and my iPod and headed to a coffee shop. I spent nearly an hour reading minutes from different hospital committees. I need to take the highlights from those minutes and place them in our unit meeting agenda. I also have about eight hospital/nursing policies and procedures that have to be reviewed, but decided to wait another day for that. Wow, that sounds like even MORE fun when actually put into words!

I took a break from my work to go to church (since I may have to work tomorrow, but won't know until the morning). The New Testament/Gospel reading was from Matthew--"Come to me, all you who labor and are burdened, and I will give you rest." Matthew 11:28 Okay, so THAT alone took some of the weight off my shoulders. What timing! Of course it didn't take away any of the actual WORK that I need to do, but definitely a different perspective on things. I do already know that some people appreciate the hard work that goes into preparing for these meetings, so that too should help with some of the anxiety.

I'm still struggling with some emotional issues. Journalling should help with that, but I haven't really been taking the time to write about it. I really should, especially if I want to get to the root of my issues and deal with them. For now, I just have tears that remain on the brink of flowing at any given time. Hmm, me thinks me may need more than an online journal to solve these problems...unless it is just a matter of hormone changes!

Anyway, I suppose I should go to bed. If I don't have to work, then there is something REALLY fun I can do tomorrow night (and I can get some extra sleep). However, if I don't have to work, then I don't get the extra bonus money. I think I'll leave that decision up to Someone Else, and be okay with whatever happens!

Good night.

Freedom

It is actually nearly 1:00 in the morning, but I wanted this post to have the July 4 date...SO, I really need to type this fast because I have TONS of work to do tomorrow and know it will be tough forcing myself out of bed even if I went there now.

However, I did want to post about freedom and the wonderful things I have because I live in this country, that I often take for granted. Here are a few of those things...

• I am free to attend whatever church I want. I am not persecuted for my beliefs.
• I can drive my car wherever I want to drive it. I can drive thousands of miles in any direction and not be stopped (unless I break any laws with my driving!). I decided I wanted to go to a different state for college; and to yet another state to live for a while.
• I can go to the grocery store to buy frozen corn and have at least five different brands to choose from (it may cost more than it used to, but I still have a choice).
• If I choose to vote, I have a say in who is elected to public office. I am free to give my opinion if I disagree with decisions made by public officials, and have many different ways to express those thoughts.
• I can wear whatever I want. I can do my hair however I want (or NOT do my hair as the case usually is!). I can wear make-up, or choose not to.
• It is okay that I am 28 years old and am not married. This is a choice that girls in many countries do not have.
• I have my own money. I own my own car and my own house. I can spend my money on whatever I want.
• There are many, MANY other rights that I have because people fought for them, and continue to fight for them, for ME. (I'm too tired to think any more...)

I love being an American. Happy Independence Day!

My bed is calling my name :o) Good night.

Why?!

Why did I just spend 30-45 minutes creating a "scrapblog" when I have been tired and crabby all day? I REALLY should have gone to bed! Actually, it was kind of fun, but sort of pointless since my blog hasn't really been for other people to read (at least not really for people I actually "know"!) I'm not even sure I understand what you are supposed to do with a "scrapblog". I tried winning a "blog makeover" a couple weeks ago, but don't really think I should be spending money to make this blog look better, since I don't think anyone cares! (unless, of course, it is for a good cause!). Wow, my attitude is TERRIFIC! I've kind of been like this all day long...

I got myself all worked up over SO many little things today. It was not fun at all, and I ended up with a "mini-meltdown" that more likely than not was not necessary. I'm feeling pretty emotional, so I really should just go to bed and try to sleep it off!

Happy July! Good night.

Let there be lights

and televisions, and radios, and computers, and hair dryers, and flat irons...I am SO excited to report that as of around 11:00 this morning I have electricity once again. That means I was without power for a little over 90 hours! I'm not REALLY complaining though because it could have been a LOT worse, and last time I checked, there were still over 8,000 homes without electricity. Today was VERY warm compared to the last few days, so it would have been pretty miserable sleeping tonight if the air conditioner hadn't been working.

I took quite a few photos on Friday and Saturday, but didn't take many of the progress that has taken place. It will take a long time for all the clean-up to be finished. One home I pass on the way to work had at LEAST three VERY large trees fall onto it. The coolest thing was how quickly neighbors got to work helping each other. An elderly woman on my mom and dad's block had a large tree fall across the street into another person's yard. The tree was chopped down and debris placed into piles before dark on Friday night. (Considering the storm hit a little before 5:00, that is pretty amazing!) My parents' neighborhood was one of the hardest hit, but there were people on every block helping each other and that continued throughout the weekend. I made a slide show of some of my pictures so it makes a little more sense. I walked around mom and dad's neighborhood Friday night and just wanted to cry. So much destruction...it looked like a war zone. But in the midst of pain and sorrow, there were people there to help pick up the pieces. My parents helped me SO much...I don't think I will have grounds to complain about them for a VERY long time! :o) We spent a lot of quality time together between cleaning up, unloading my refrigerator, feeding me, giving me rides...SO great!

One good thing about no electricity is a couple nights I went to bed really early. How cool if I went to bed when it got dark every night! Last night I was up pretty late, but didn't have to work today. I took the baby's sisters to the Zoo this morning, then napped most of the afternoon. I went with my mom to see the Olympic trials which was SO cool. (I had to skip my softball games which was sad, but this was a "once in a lifetime opportunity" that I didn't want to miss.)

Back to work tomorrow...I'm not sure if I want them to give me an option to have the day off or not. I think I would take it...my house REALLY needs vacuuming, and I should go get my frozen food from my parents' neighbor's house! I also need to finish off my jewelry party order.

I suppose I should go to bed. Good night!